Victoria Hope Dooley was born on Monday November 21, 2011. Family, friends, big sister Aubrey and proud parents Shawn and Cynthia celebrated her arrival. That first week she faced her first big test and embarked on a voyage of courage, hope, tolerance, persistence, love and grace. That test was the Norwood surgery. Victoria Hope, with the help of a team of heroes at NYU Medical Center, made it through! She would face two more surgeries, the Glen and Fontan, over the next two years. Through everything, Victoria has maintained a grace that we can only describe as inspiring. Her smile has cut through tears, fears, and worry, and lifts everyone she meets. Victoria is seven now, is in second grade and recently starting playing softball. Everything this sweet kid is able to do and enjoy is in great thanks to medical professionals, research teams and all who contribute to the task of overcoming the odds to provide a better life for those with heart defects.
Hypo-plastic Left Heart Syndrome has no cure. It requires a series of surgeries to ‘re-route” and “re-configure” the heart and arteries in a way what will give and sustain life. It is part of Victoria’s Voyage and part of ours. To raise awareness and funds for research, about this and other CHD’s, we are forming a team to participate in the Long Island Congenital Heart Walk on May 19th at Sunken Meadow Park. We will be called Victoria’s Voyage and would be honored to have you all walk with us to celebrate her triumphs and support those who make it all possible. Please also consider making a donation to help fund more lifesaving research for all people affected by CHD. With research come more treatment options and better outcomes and quality of life for those affected.